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Advocacy In Action

Fibromyalgia Fights On

By uniting a passionate collective of leaders, we catalyze the transformative changes essential for the well-being of our entire fibromyalgia community. The power of investing in patient leadership and advocacy training cannot be understated, as it seeds the growth of a positively impactful community. In 2019, we pioneered a brand-new fibromyalgia advocacy training program. This initiative has been a cornerstone in bridging advocates and organizations, fostering a harmonious and empowered community dedicated to making a difference.

Next Generation Fibromyalgia Advocacy Training

In September 2019, our nonprofit organization launched a new grassroots National Fibromyalgia Advocacy program. Patients, advocates, clinicians, and caregivers met on Capitol Hill for advocacy education and attended over 54 meetings to educate their legislative representatives about supporting critical fibromyalgia medical research.

We marked 2020-2024 with a significant expansion of our initiatives. Beyond our traditional in-person Hill Day in March 2020 and all virtual meetings that followed, we broadened our impact through public awareness campaigns, including issuing Proclamations and engaging communities through regional meetings and town halls. By expanding virtually, our organization successfully met with over 100 Congressional offices to advocate for fibromyalgia.

Advocacy Updates

Fibromyalgia Proclamations 2026

  Fibromyalgia Proclamations 2026: Advocacy, Awareness, and Community Action Each year, Fibromyalgia Awareness Day and Fibromyalgia Awareness Month give our community an opportunity to raise...

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Fibromyalgia Proclamations 2024

As Fibromyalgia Awareness Month comes to a close in May 2024, we want to take a moment to honor a historical step forward for the fibromyalgia community. A group of advocates successfully acquired...

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Fibromyalgia Advocacy for Research Funding Continues

Fibromyalgia Advocacy continues as Fibromyalgia Team Leaders head to Washington, D.C.!  Our dedicated group of fibromyalgia advocates set out on new adventures to meet with Congressional leaders in...

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Fibromyalgia Advocacy in 2024

Join Us in Amplifying Fibromyalgia Advocacy in 2024!  As we step into a new year, our commitment to fibromyalgia advocacy has never been stronger. We are poised to launch the largest grassroots...

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Fibromyalgia Giving Tuesday 2023 – Grow With Us!

Join Us This Giving Tuesday to Make a Difference in the Lives of Fibromyalgia Patients!  This Giving Tuesday, we invite you to be a part of a compassionate movement dedicated to changing the lives...

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Fibromyalgia Conference 2022

The Fibromyalgia Community Conference All-Virtual via Hopin November 4th & 5th Register Here    

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Delegate Training

Collaboration is essential as we unite with diverse organizations, healthcare leaders, and Fibromyalgia Delegates nationwide for meetings with Congressional leaders. We are set to identify champions for fibromyalgia in Congress and advocate for consistent funding for fibromyalgia-focused research. We aim to achieve accurate condition classification and accelerate the development of translational treatments. This collaborative effort led to the inception of the National Fibromyalgia Delegates Training Program, marking a significant milestone in our advocacy journey. This program allows us to train the next generation of Fibromyalgia Advocates.
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Public Awareness

Participate in trainings, interviews, Proclamations, town halls, and collaborations with other chronic illness advocates and organizations. We're turning May into one of the largest public awareness months! We are proud to be working with Veteran Voices For Fibromyalgia, Men With Fibromyalgia, My Several Worlds, The Fibromyalgia Pain Chronicles, Lupus Spoons, International Pain Foundation, and Looms for Lupus for May Awareness Campaigns that support Fibromyalgia, Lupus, and Mental Health.
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