Fibromyalgia Research In Action

We bring together researchers and technology companies who are inspired to engage with the fibromyalgia community. As a national organization, we invest in and support various types of fibromyalgia research, and we make it tangible for patients to get involved. We advocate for research advancements at the federal and university levels and support researchers through crowdfunding efforts. We are committed to including all genders, ethnicities, ages, and socioeconomic statuses in fibromyalgia research. Health equity and access are interwoven into all of our fibromyalgia programs. We are active members of the NINDS Nonprofit Forum, the NIH’s BRAIN Initiative®, Research!America, and collaborate with other research organizations.

Research Matters

Patient-driven research will lead to better health. Patient involvement ensures that study results are more useful to patients and others involved in making important health care decisions. Patients bring issues that matter to them, such as quality of life and ability to function, to the forefront of conversations about evaluating the effectiveness of health care options. If patients can work alongside scientists as partners in designing research, they can also support the successful dissemination and implementation of the results.